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Canada Research

Learn more about Myositis Breakthroughs!

Dr. Tarnopolsky Research Diet and Exercise

Following are presentations from Dr Tarnopolsky with his views on diet and exercise. He is a premier Canadian scientist working with Myositis and is plugged into the worldwide network of similar researchers. He has made it his personal journey to come up with potential remedies to offset the disease’s effects.

Exercise and Nutritional Interventions for Patients Suffering from Inclusion Body Myositis - Part 1

Exercise and Nutritional Interventions for Patients Suffering from Inclusion Body Myositis - Part 2

Supplement Questions

  • I would like to know the recommended daily amount of creatine powder for adults with Myositis. Should this dose be taken every day with no break for life? Is there a problem if you stop at some point? Any recommendations for when and how to take it (i.e. with water, juice, food etc.)? Will Myopeople with Dysphagia have trouble swallowing the Creatine?
    3 Mg's per day is the recommended amount of creatine for adults with Myositis. A one month pause after a 3 month trial is OK but many take it daily, like a vitamin since Myositis increases our bodies need for more than the Canada food guide recommendations. There is no problem with stopping it at any time, but a consistent daily regimen will usually establish a positive effect after 3 weeks, and is what is recommended. Using a form of sugar (e.g. Orange Juice) with Creatine can magnify its effects positively. The product that we provide has its own sugar added for the mentioned reason. We are told that the Creatine tablets are identical to a candy called Sweet tarts, and dissolve on your tongue, so no dysphagia Issues.
  • Is there a recommended brand of mitochondrial cocktail for IBM? What are the essential ingredients of this cocktail? What are the contents of Muscle 5, so we can assess any contraindications with all of our other meds? Is a KETO diet okay to try with IBM?
    The studies that we did with CoQ10, Vitamin E and Creatine showed improvements that we believe help with Mitochondrial function. The ingredients to Muscle5 include medical (24 g whey protein isolate, 16 g milk protein isolate, 3 g creatine and 1000 IU vitamin D per scoop) and non-medical (natural French vanilla flavoring, sugar, stevia and soy lecithin). We've had the contraindication question before and we aren't aware of any. However, it may be worth having a trusted Doctor review the ingredient list. Dr. Tarnopolsky is not a fan of Keto dieting, feeling that it just makes for a fatty liver.
  • I would like to know the recommended daily amount of creatine powder for adults with Myositis. Should this dose be taken every day with no break for life? Is there a problem if you stop at some point? Any recommendations for when and how to take it (i.e. with water, juice, food etc.)? Will Myopeople with Dysphagia have trouble swallowing the Creatine?
    3 Mg's per day is the recommended amount of creatine for adults with Myositis. A one month pause after a 3 month trial is OK but many take it daily, like a vitamin since Myositis increases our bodies need for more than the Canada food guide recommendations. There is no problem with stopping it at any time, but a consistent daily regimen will usually establish a positive effect after 3 weeks, and is what is recommended. Using a form of sugar (e.g. Orange Juice) with Creatine can magnify its effects positively. The product that we provide has its own sugar added for the mentioned reason. We are told that the Creatine tablets are identical to a candy called Sweet tarts, and dissolve on your tongue, so no dysphagia Issues.
  • Is there a recommended brand of mitochondrial cocktail for IBM? What are the essential ingredients of this cocktail? What are the contents of Muscle 5, so we can assess any contraindications with all of our other meds? Is a KETO diet okay to try with IBM?
    The studies that we did with CoQ10, Vitamin E and Creatine showed improvements that we believe help with Mitochondrial function. The ingredients to Muscle5 include medical (24 g whey protein isolate, 16 g milk protein isolate, 3 g creatine and 1000 IU vitamin D per scoop) and non-medical (natural French vanilla flavoring, sugar, stevia and soy lecithin). We've had the contraindication question before and we aren't aware of any. However, it may be worth having a trusted Doctor review the ingredient list. Dr. Tarnopolsky is not a fan of Keto dieting, feeling that it just makes for a fatty liver.

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