Myositis Forum

Rene in Quebec is a very handy guy and he has designed his own half-step cane. Here are the instructions and photos: #1 The 1/2 step assembly. My house outside steps are 7" so my base total 3 1/2". My sons house steps are 8" so I have in my car a second assembly with a base of 4".  You need to mea

Has anyone had results with creatine?

It was a whirlwind 24 hours in Edmonton: an Italian feast followed by Michelle Obama with friends; the Royal Alberta Museum; and then lunch with fellow MyoCan member, Sonja. After several chats on the phone and emails, it was delightful to finally meet Sonja and her husband in person over lunch. I'm

I found a link to Patrick Warner's videos on the Myositis Canada Facebook page (you should join if you haven't already). He has come up with some terrific modifications to his home that allow him to live independently. Check out this blog post and videos: https://cureibm.org/inclusion-body-myositis-

Here's Brenda with her Stair Lift (and a MyoWear totebag!)

One of our globe-trotting members, Don, put together a whole bunch of tips, suggestions, and recommendations when travelling with myositis. Here's a link to his article . Happy travels, friends!

Researchers at the neuromuscular program at the University of California at Irvine are conducting a study to identify how much of a role pain plays in sIBM. If you have inclusion body myositis, please consider completing the survey linked here. Your participation in this research project is ver

Next Support Meeting: We are meeting for brunch! When: Sunday, February 3rd, 10 am Where: The Lake House, 747 Lake Bonavista Drive SE Reservation under 'Gael'. Please email Gael if you would like to join us--the more, the merrier!

I've only skimmed through this website, but it looks like a great resource: https://cureibm.org/ Which are your go-to websites for IBM?

I am new to DM, just diagnosed last month. I was wondering if anyone has advice on flare ups, medication, exercise ,diet or anything that you have found helpful in your journey. Hope all are having a great weekend! Krista

Here's Board Member Brenda Rosborough using her half-steps in her house.