IBM

Has anyone had results with creatine?

I've only skimmed through this website, but it looks like a great resource: https://cureibm.org/ Which are your go-to websites for IBM?

Researchers at the neuromuscular program at the University of California at Irvine are conducting a study to identify how much of a role pain plays in sIBM. If you have inclusion body myositis, please consider completing the survey linked here. Your participation in this research project is v

I found a link to Patrick Warner's videos on the Myositis Canada Facebook page (you should join if you haven't already). He has come up with some terrific modifications to his home that allow him to live independently. Check out this blog post and videos: https://cureibm.org/inclusion-body-myositis-