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Myositis Forum

You belong here.

2 posts

For patients and friends of those with Dermatomyositis, Polymyositis and Juvenile Myositis.

2 posts

Find out what the group in your region has been doing!

1 post

Want to sell or buy something? Post it here!

4 posts

For those folks with Inclusion Body Myositis and those who love them.

3 posts

Fun times, nifty devices and more!

0 posts

Got a question or comment that doesn't fall into the other categories? It belongs here.

New Posts
  • Gael
    Jun 5

    One of our globe-trotting members, Don, put together a whole bunch of tips, suggestions, and recommendations when travelling with myositis. Here's a link to his article . Happy travels, friends!
  • barry stanley
    May 21

    Has anyone had results with creatine?
  • Gael
    Mar 26

    Researchers at the neuromuscular program at the University of California at Irvine are conducting a study to identify how much of a role pain plays in sIBM. If you have inclusion body myositis, please consider completing the survey linked here. Your participation in this research project is very important and will help us understand your disease better. Link to survey: https://goo.gl/forms/6MJ8vSh7zqGEEATJ2 If you have questions or concerns, please contact: Veena Mathew Clinical Research Coordinator Department of Neurology UCI MDA-ALS & Neuromuscular Center 200 S. Manchester Ave Ste. 130, Orange, CA 92868 T 714.456.2864 F 714.456.6526 vmathew@uci.edu  Thank you for your help.