Gael
Jun 5 One of our globe-trotting members, Don, put together a whole bunch of tips, suggestions, and recommendations when travelling with myositis. Here's a link to his article . Happy travels, friends!
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For patients and friends of those with Dermatomyositis, Polymyositis and Juvenile Myositis.
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- GaelMar 26Researchers at the neuromuscular program at the University of California at Irvine are conducting a study to identify how much of a role pain plays in sIBM. If you have inclusion body myositis, please consider completing the survey linked here. Your participation in this research project is very important and will help us understand your disease better. Link to survey: https://goo.gl/forms/6MJ8vSh7zqGEEATJ2 If you have questions or concerns, please contact: Veena Mathew Clinical Research Coordinator Department of Neurology UCI MDA-ALS & Neuromuscular Center 200 S. Manchester Ave Ste. 130, Orange, CA 92868 T 714.456.2864 F 714.456.6526 vmathew@uci.edu Thank you for your help.