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Myositis Forum

You belong here.

DM/PM/JM

2 posts

For patients and friends of those with Dermatomyositis, Polymyositis and Juvenile Myositis.

News from local groups

2 posts

Find out what the group in your region has been doing!

For Sale

1 post

Want to sell or buy something? Post it here!

IBM

4 posts

For those folks with Inclusion Body Myositis and those who love them.

Myositis Life

3 posts

Fun times, nifty devices and more!

Other things

0 posts

Got a question or comment that doesn't fall into the other categories? It belongs here.

New Posts
  • Gael
    Jun 5, 2019

    Travelling with myositis

    Discussion 
    One of our globe-trotting members, Don, put together a whole bunch of tips, suggestions, and recommendations when travelling with myositis. Here's a link to his article . Happy travels, friends!
  • barry stanley
    May 21, 2019

    Creating

    Discussion 
    Has anyone had results with creatine?
  • Gael
    Mar 26, 2019

    Research survey for those with sIBM

    Discussion 
    Researchers at the neuromuscular program at the University of California at Irvine are conducting a study to identify how much of a role pain plays in sIBM. If you have inclusion body myositis, please consider completing the survey linked here. Your participation in this research project is very important and will help us understand your disease better. Link to survey: https://goo.gl/forms/6MJ8vSh7zqGEEATJ2 If you have questions or concerns, please contact: Veena Mathew Clinical Research Coordinator Department of Neurology UCI MDA-ALS & Neuromuscular Center 200 S. Manchester Ave Ste. 130, Orange, CA 92868 T 714.456.2864 F 714.456.6526 vmathew@uci.edu  Thank you for your help.